What is the New Treatment for Idiopathic Intracranial Hypertension? Dr. Eugene Could Discusses Idiopathic Intracranial Hypertension Analysis and Therapy
Swedish Neuroscience Institute, Neuro-Ophthalmology
Seattle, WA
source
What is the New Treatment for Idiopathic Intracranial Hypertension? Dr. Eugene Could Discusses Idiopathic Intracranial Hypertension Analysis and Therapy
Swedish Neuroscience Institute, Neuro-Ophthalmology
Seattle, WA
source
I believe I am dealing with IIH since my #2 moderna covid vaccine in June. Done lots of tests but have to see a neurologist next. It never goes away and when the pressure is bad is debilitating.
Thank you!
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This guy is missing the point, what causes this problem, I have these symptoms and more, I weigh 120 pounds it’s not a weight issue, I believe it’s from neck instability, as soon as I get some extra money I’m going to CARING MEDICAL INSTITUTE they treat this problem with PROLOTHERAPY and of course Medicare won’t pay for it.
I was diagnosed with IIH and have no weight issues
The weight is a copout and unfair.
I see many patients that are normal body weight.
I’ve lost 40lbs and my vision, tinnitus, pressure and pain is worse than ever. If I laughs too much it immobilizes me from the pain inside my head and I feel like I can’t move. My original state at time of diagnosis is more preferable at this point
It’s nothing to do with being over weight!! Give it up! Even my doctors say that’s a joke. It effects anyone. X
I have small woosh noises in my head, i am 14. I searched about it and i readed that it was iih please share you'r experiences with me i am really scared about it
Once again the stigma of being overweight is used as a default diagnosis. It took me almost 3 years to get my Cushings disease diagnosed, it causes extreme weight gain in some. Sometimes there is a medical reason for weight gain.
I developed iih after taking a prescribed medication that specifically says do not give to patients with previous head injury. I was never given medication to treat the pressure issue, they did two lumbar punctures, screwed up the second one, still to date need a blood patch because the surgery for the blood patch was the same day last year they started suspending what pennsylvania called, non life threatening appointments. At this point my right eye is so sensitive to the touch that it feels like it's about to pop out of my skull and the headaches are so severe that it's debilitating. I wish there was some way I could come see you guys for treatment. The eye issues, headaches, pulsating tinnitus and so on is absolutely unbearable. Oh and because of the lack of treatment I have been told I have developed two lesions on my brain.
Lyme disease may be the cause. Idiopathic means they don’t know, so check for Lyme disease. It can’t hurt to check, and may prevent an unnecessary shunt if diagnosed.
I had 3 days headache with dizziness and the pain is greater wheh i stand up
i’ve seen multiple doctors, and been told i have all the symptoms with a larger blind spot which i was told cause be caused by pressure, then completely saw a different doctor 2 days ago and was told it was anxiety??? like excuse me i’m in agony most of the time.
Has anyone else had a hard time getting diagnosed with IIH. I have had two different doctors tell me they think I have it because of my symptoms but I still haven’t been able to get the lumbar puncture done because the hospital won’t call me back! I don’t know what to do!! I have been battling symptoms for 3 months now and just recently my vision has started darkening but I still can’t get the lumbar puncture schedule! I don’t know what to do at this point!
Thank you for this info
Has anyone who had double vision because of IIH and taken Acetazolamide (Diamox) and can tell me when they noticed improvement?
I’ve only been taking them for a few days but my double vision isn’t getting better (maybe even worse?) and it’s really stressing me out. I really fear going blind 🙁
As atrophy occurs sometimes from a swollen optic nerve, how do you view this when a patient already has atrophy? Specifically… my extremely rare history. I had bilateral RB was treatments with 23 radiation treatments. Left eye was also enucleated. I am constantly told that I can be lumped in with the number of patients with IIH without optic nerve swelling. I have had many LPs with OP of about 25-36. Not very high, but enough that the pressure(not migraines) disrupts daily life. More to this, but with my history I am a person that loves science. My retina specialist and prior pediatric ophthalmologist believe that with an atrophy that my nerve can’t swell. I personally know that the peripheral test isn’t good as I have adapted to having one eye and deep set eye sockets that my results are average but true reality being that I rely heavily on peripheral vision due to the atrophy and vision loss in my central vision. Lol. A subject I can go in about. Just curious about your views and/or experience. 🙂
I recently got diagnosed with this. I gained weight once I started taking meds. Thoughts?
Has anyone been on topirmate and diamox at the same time??? My
Pharmacist told to not take both together but my doctor is telling me to. Any thoughts?
Does anyone have bradycardia with iih????
You can be cured if u lose weight!! Biggest load of bull I’ve ever heard! I lost 2 stone and my symptoms worsened!
Do doctors simply not know about cranial blood pressure or is it another forbidden topic?
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