You have 14 Days to Fix Ringing Ears or It Will Be Too Late...Learn More

Idiopathic Intracranial Hypertension Diagnosis and Treatment

Dr. Eugene Could Discusses Idiopathic Intracranial Hypertension Analysis and Therapy
Swedish Neuroscience Institute, Neuro-Ophthalmology
Seattle, WA


View Comments (24)

  • I believe I am dealing with IIH since my #2 moderna covid vaccine in June. Done lots of tests but have to see a neurologist next. It never goes away and when the pressure is bad is debilitating.

  • i’ve seen multiple doctors, and been told i have all the symptoms with a larger blind spot which i was told cause be caused by pressure, then completely saw a different doctor 2 days ago and was told it was anxiety??? like excuse me i’m in agony most of the time.

  • Has anyone else had a hard time getting diagnosed with IIH. I have had two different doctors tell me they think I have it because of my symptoms but I still haven’t been able to get the lumbar puncture done because the hospital won’t call me back! I don’t know what to do!! I have been battling symptoms for 3 months now and just recently my vision has started darkening but I still can’t get the lumbar puncture schedule! I don’t know what to do at this point!

  • Has anyone who had double vision because of IIH and taken Acetazolamide (Diamox) and can tell me when they noticed improvement?

    I’ve only been taking them for a few days but my double vision isn’t getting better (maybe even worse?) and it’s really stressing me out. I really fear going blind :(

  • As atrophy occurs sometimes from a swollen optic nerve, how do you view this when a patient already has atrophy? Specifically... my extremely rare history. I had bilateral RB was treatments with 23 radiation treatments. Left eye was also enucleated. I am constantly told that I can be lumped in with the number of patients with IIH without optic nerve swelling. I have had many LPs with OP of about 25-36. Not very high, but enough that the pressure(not migraines) disrupts daily life. More to this, but with my history I am a person that loves science. My retina specialist and prior pediatric ophthalmologist believe that with an atrophy that my nerve can’t swell. I personally know that the peripheral test isn’t good as I have adapted to having one eye and deep set eye sockets that my results are average but true reality being that I rely heavily on peripheral vision due to the atrophy and vision loss in my central vision. Lol. A subject I can go in about. Just curious about your views and/or experience. :)

  • I recently got diagnosed with this. I gained weight once I started taking meds. Thoughts?

  • Has anyone been on topirmate and diamox at the same time??? My
    Pharmacist told to not take both together but my doctor is telling me to. Any thoughts?

  • You can be cured if u lose weight!! Biggest load of bull I’ve ever heard! I lost 2 stone and my symptoms worsened!