Venous stenting is another remedy for intracranial hypertension patents which have one thing known as cerebral stenosis. It’s much less invasive than a VP or LP shunt, and infrequently has much less problems. Latest research have proven that the majority sufferers which have undergone stenting have had a major discount in ICP ranges and signs related.

To be able to know for those who qualify for stenting, it’s essential to first have one thing known as a cerebral angiogram. Many should journey to discover a specialist to deal with them, as this isn’t a typical process.

Final yr, I had 2 stents positioned in my proper transverse sinus at Weill Cornell in NYC. Right here is my expertise with stenting and a few data that I’ve realized alongside the best way.

My left transverse sinus was hypoplastic (not absolutely developed) and did not have any stream, and my proper transverse sinus had extreme stenosis. Sadly, I did not have a lot symptom reduction, however my case is a little more advanced than many.

I later realized I’ve a connective tissue dysfunction known as Ehlers-Danlos Syndrome. I even have chiari malformation and craniocervical instability. These circumstances could cause all the identical signs of IIH–and I’ll quickly bear surgical procedure to deal with them.

FACEBOOK GROUP: “Stent/IIH”
https://www.fb.com/teams/198904797135988/

Medical doctors/facilities focusing on venous stenting for IIH:
**remark beneath if you already know of extra docs**
-Dr. Athos Patsalides (Weill Cornell)
-Dr. Moghekar (Johns Hopkins CSF heart)
-Dr. Kenneth Liu (at present not working towards)
-Dr. Kyle Fargen (Winsten Salem, NC)
-Mayo Clinic Rochester
-Dr. Dale King (Kentucky)

My surgeon speaking about venous stenting: https://youtu.be/0kPvLySVJlo

Dr. Athos Patsalides + latest analysis research on venous stenting:
https://jnis.bmj.com/content material/11/2/175

Dr. Liu + venous stenting in EDS sufferers: https://vimeo.com/190164038

Johns Hopkins + venous stenting:
https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/cerebral-fluid/procedures/ptc-stent.html

Affected person experiences:
http://weillcornellbrainandspine.org/venous-sinus-stenting-patient-stories
https://weillcornell.org/information/how-a-venous-stenting-procedure-helped-one-woman-find-relief-from-pulsatile-tinnitus
http://weillcornellbrainandspine.org/patient-story/i-was-ready-not-be-lost-cause
http://weillcornellbrainandspine.org/patient-story/it-was-time-do-something

#intracranialhypertension #pseudotumorcerebri #venousstenting
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