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Pseudotumor Cerebri (IIH) Story Time | Eye Doctor Explains

On this video Dr. D explains a case research the place a affected person was recognized with pseudotumor cerebri (idiopathic intracranial hypertension or IIH). She goes by means of his signs, her findings, his remedy, and the way he is doing now. IIH is usually a situation that robs somebody of their imaginative and prescient, however will be caught by a radical annual eye examination. When you have pseudotumor cerebri, depart a remark under explaining the way you had been recognized, how your imaginative and prescient has been affected, and if you happen to’re presently taking diamox (aka acetazolamide).
#PseudotumorCebrebri #IdiopathicIntracranialHypertension #IIH

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View Comments (30)

  • The same thing happened to me 23 years ago. I was having headaches so I went to the eye doctor to make sure it wasn't from straining. The doctor kind of panicked because she saw pappliedema and insisted that I go to the ER immediately for CT Scan to rule out a tumor. I was told I had pseudotumor cerebri. I never got any kind of treatment for it and went on about my life for the next 20 years. I self medicated with 1200 mg of motrin for my headaches. I suffered quite a bit. Most doctors had no idea what I had and thought it was "all in my head". Now I am 46 and my vision is deteriorating significantly. I believe that the pressure in my brain and spinal column is also causing me to have some nerve pain in other parts of my body as well. Some days I can barely walk. I am about to ask my eye doctor about shunt or stent surgery because I cannot tolerate the acetezolamide. The side effects of the medicine are worse than the disease. For me anyways.

    Long story short... If you get this diagnosis, don't avoid getting help. It is a very real disease that should be treated.

  • I have fake tumor on my optic nerves also have water on brain I take diamox I have herpes on my let eye

  • My son (13) and I both have IIH. We both are on Diamox and I take Topamax as well.

  • I have this condition I ran out of diamox and cant afford it now because my deductible is too high. $189 for a 30 day supply. My vision is funny now

  • I’ve been suffering eye problem since 2019. And my eye got loosens last Dec. 2020. My optha doctor prescribed me to take steroids. And im taking it now for 3months. They say its pseudo tumor. Check my channel i have video here to see my condition.

  • I have IIH and thank god for my ophthalmologist every day because it was missed by primary care, ent, audiologist, neurology, and neurosurgery. He sent me right from my regular eye exam to the ER, thinking I had a tumor or bleed. I still have active disease on diamox and Topamax and see my neuro-ophthalmologist every 3 months

  • I have IIH and it’s a nightmare. I had it for about a year, and half a year with diamox (what I call the demon drug). Two months ago my neuro and neuro ophthalmologist said it was in remission. I went for my check up today...and it’s back. I hate it. Time to go back on diamox...oh the joy 🙄🙄 it’s incurable so it’ll never be gone, but it can go into remission

  • I have iih unfortunately my optometrist missed it and I lost my vision in right eye and then was diagnosed and lp shunt fitted