New Pseudotumor Cerebri Treatment: Ashley’s Story



New Pseudotumor Cerebri Treatment. After visiting 30+ physicians, Ashley was identified with the uncommon situation referred to as pseudotumor cerebri. She and her household turned to the specialists at Johns Hopkins who labored as a staff to implant a stent, a brand new method to treating this situation that’s sometimes handled with a shunt. Discover out extra about our specialists at www.hopkinsmedicine.org/neuro

For appointments, Maryland residents ought to name 410-550-1470, and out-of-state residents ought to contact 1-855-884-6754.

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New Pseudotumor Cerebri Treatment

20 thoughts on “New Pseudotumor Cerebri Treatment: Ashley’s Story”

  1. I had a large meningioma tumor removed on February 1 of this year. I am experiencing a lot of the symptoms associated with pseudotumor cerebra, feeling the pressure in my head when going from ceded to standing and hearing like a whooshing sound in my head I can’t even feel on top of my head in the area where the tumor was removed and feel a throbbing. Also when I bend over to tie my shoe or to pick something up in a come back upright it increases the pressure. Is this normal after surgery and will this eventually go away on its own or do I have to have some sort of intervention? I also will get some accompanied blurred or fuzzy vision when there’s pressure kicks up.

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  2. Has anyone hear took accutane? I took accutane september 2020 and within hours I started to get a severe headache and brain fog that lasted about 4 months and now I just get severe headaches. The eye doctor says my pressure is totally fine and my eye sight is fine but my eyes hurt like literally 24/7. I’ve been to like 5 doctors and they just say it’s anxiety. My symptoms are eye ball pain and horrible headaches that I can never sleep from. Any suggestions?

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  3. I was diagnosed a year and a half ago. I have a complicated case as when I was diagnosed they found blood clots in my arms. I have issues with arm pain and leg pain on the right side. Also have pulsating tinnitus, head pain, sinus transverse narrowing and vision, dizziness issues. No one seems to be able to help me. Would you take my case please?

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  4. I am hoping someone can help my sister.
    She is currently 59 now and has been suffering with this condition since about 2006 or so. Sadly, she has had what I consider a horrific life since then. She had the shunt put in back then, she us obese and has thyroid issues as well. Her vision is very bad now, but not blind. She is in the ER so often she knows they are tired of seeing her. They now accuse her of making things up so she can get narcotics. She unfortunately is a single mother, unable to have a job, let alone have a quality of life. She has continued blackouts now, and has multiple seizures on a regular basis. They get so bad she injures herself if she lands badly.
    She has no insurance, only Medi-Cal (government assistance)
    I feel so bad. I have no idea how to help her. Doctors here say there is not enough research on this condition, etc.
    We are jn Central California (fresno).
    Any suggestions out there?

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  5. I was diagnosed with this disease at age 12, along with meningitis, pineal cyst, arachnoid cyst, I was hospitalized for weeks and weeks I was finally sent home and 10 years have passed and i have had no side effects besides headaches until the past month. I’ve started having vision problems and ringing in my ears and severe headaches (I haven’t had these types of headaches in ten years) I am very scared because what I went through when I was younger was absolutely debilitating and now I have a 1 year old. I haven’t checked on my cysts or condition since that time so it’s very long overdue. I just need prayers guys

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  6. This video was posted 8 years ago. Is there any update? Are these non-surgical procedures common place now? My wife suffers from Pseudotumor cerebri we are looking for job-surgical options. Any advice would be appreciated.

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  7. Ick, i had this my last year of highschool. It was taken care of with a few spinal taps and some diuretics, I am so glad my mom kept taking me back to the hospital and advocating for me.

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  8. I have vision loss in my right eye and see bright white small dots that flash seldomly. In the deep right side of my right eye is darkness and I cannot see anything. Currently attending college. graduating this December and soon doing an internship. Its been a going diagnosis since March 2020. I'm on lisinopril 20mg once daily and Topomax or topiramate 25mg twice daily now once daily. Happened after a car wreck, went to a lawyer, went to a chiropractionioner then had two epidural steroid injections. After those injections was when I started seeing huge black objects, white flashes in both eyes, and EXTREME MIGRAINES EXTREMELY PAINFUL……….all while in college.
    Didn't complain about 2 nobodies. Handle my sh*t. I'm hoping people would respond on here and be more vocal. Does this count as a disability? Started with Papilledema, then pseudotumor (fake tumor) but gotta do another MRI to see if the vessels in my brain are not narrow or possibly the eye based on what they've been telling me. I was taking Aleve it would help then suddenly the pain went away so no more migraines.

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  9. On a early morning I woke up with severe eye pain, I work with ophthalmologists so I decided to get my eyes checked. After all the tests we noticed that my optic nerve was swollen, got sent for a MRI. I was completely scared the doctor wanted to know what was going in my brain & what was putting pressure on my optic nerves. Long story short 2 days before I was supposed to go in for the MRI I had a TIA (small stroke) got rushed to the hospital, turns out the TIA was caused by all of this 😓. Got sent for the MRI at the emergency room, later diagnosed with pseudotumor cerebri (IIH) at the age of 22!. Got a lumbar puncture with a pressure level of 38. I’ve currently lost 30lbs & doing much better 🙏🏻 GOD IS GOOD

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  10. I was diagnosed with this disease in 2013 and had a lumbar shunt placed in 2013 due the the medications not working. I am now getting a revision done but this time they are doing the vp shunt.

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